HealthMap 12 Month Questionnaire

If you are a HealthMap participant, and haven’t yet filled out the 12 MONTH “FINAL” questionnaire, email us and we will send you a link: healthmap@monash.edu

Take control of your health

HealthMap is an online application designed to give you more control and stay healthy with HIV.

HealthMap is currently being run as a clinical trial throughout Australia. Stay tuned for our results!
The HealthMap clinical trial has closed recruiting at these HealthMap clinics.

Take control of your health

Here’s what people are saying about HealthMap…

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Questions about HealthMap

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Q: Is this an important study?

A: Yes, this is an opportunity to take part in a major national study across Australia.

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Q: How can this programme help me?

A: The HealthMap programme is designed to help you get a clear picture of your health and stay healthy. You can use an online summary of your health and explore online resources tailored for you. Health coaches are also available to help you work on the aspects of your health that are important to you and a confidential online chat forum lets you discuss with others.

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Q: Will this programme help me decide my health priorities?

A: HealthMap will give you some tools to help you manage your health and work better with your healthcare provider.

Health record iconQ: Will my health record and personal information be shared outside my clinic’s practice?
A: The HealthMap Trial Manager and Coordinator will have access to your contact details so we can remind you of your clinic visits and send you information about the study. Any information that you give us that can be identified with you will remain confidential and will only be shared with your consent, except as required by law.

What is involved in the HealthMap program?

Whats Involved

We are doing research to find out how much HealthMap can help people with HIV.

To join the programme you will need to continue to see your regular HIV doctor and complete an online survey three times over a year.

The research involves some doctors getting access to the HealthMap programme earlier than other doctors. We will choose which are ‘early’ doctors and which are ‘late’ doctors by random (like tossing a coin).

The Detail

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The HealthMap programme is an interactive website for people with HIV and their healthcare providers. It gives a platform for sharing health information and test results. It may help identify health goals and ways to achieve these goals.

HealthMap hopes to help you to decide your health priorities. It may also make it easier for you, your doctor and your clinic team to work together to help you make your health better.

We know it’s sometimes hard to find the time or space to work out how things are going with your health and tackle the things that really make a difference. To help make this easier, HealthMap researchers have talked to people with HIV and their healthcare providers over the past several years. These discussions and research have led to developing the HealthMap programme. Since then, we’ve worked with a team of software developers to build an interactive website that’s easy to use and personalised with your own health data.

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One of our aims is to reduce the risk for heart disease. We will measure your risk of heart disease throughout the programme. We will also look at other potential benefits like quality of life and mental health.

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To participate in the HealthMap programme you must be:

  • At least 30 years old
  • Attending one of the participating clinics
  • Not have a history of heart disease or stroke
  • Not previously participated in self-management or coaching programmes

If you’re interested in joining or have some questions you can let us know by phone, text or email or join up at one of the HealthMap clinics. You will need to sign a consent form to show that you are happy to participate in the research.

Once enough people have joined up, we will randomly choose (like a coin toss) which doctors get early access to the programme and which get access a year later. Everyone gets access to the programme, but we will find out what difference the programme makes in the earlier group.

You will then be asked to come to your usual clinic for two visits, over the following year (one at the start and one 12 months later) and complete an online survey at home or in the clinic. You will be given $10 after the baseline study visit and $20 at the 12 month visit (this includes $10 for completion of the 6 month questionnaire) to cover any travel or parking associated with the study visit.

HealthMap Clinics Recruiting Closed

In Queensland:

Holdsworth House Brisbane

In South Australia:

Riverside Family Medical Practice

Contact

If you are interested in joining this study, please email us at healthmap@monash.edu or leave your details here.

We’ll be in touch with you soon.

Call HealthMap1800 004 284

Name

Phone

Email

City

Usual clinic for HIV care

Questions/Comments

Team

elliott-julian

Julian Elliott is the Project Director.

He’s the Head of Clinical Research at the Alfred Hospital Infectious Diseases Unit and HIV Clinical Advisor, Centre for Population Health, Burnet Institute in Melbourne. He has been working as an HIV doctor and researcher for years and is passionate about improving the health and treatment for people with HIV.

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Karen Klassen is the HealthMap Project Leader and clinical research fellow.

She worked as an HIV specialist dietitian for over 8 years in London UK and is currently lecturing at Monash University in addition to leading the HealthMap project. She completed her PhD at the University of Melbourne with research focused on examining the issues of vitamin D deficiency in people with HIV. In her spare time, she loves making lotion and searching for the best martini in Melbourne (but not at the same time)!

 

Julia Stout

Julia Stout is the HealthMap Project and Operations Manager.

She has a Masters in Public Health and Bachelors in Ethics in Health and Healthcare. After working in San Francisco, USA on HIV policy and prevention programs, she spent 10 years living and working in Sub-Saharan Africa mainly in the field of prevention of mother-to-child-transmission of HIV and for the International AIDS Vaccine Initiative. Julia enjoys bush camping and wandering off the beaten track.

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Jarrel Seah is the HealthMap Technical Support Officer.

He is a Monash University medical student doing a research year at the Alfred Hospital who is also a software developer on the side.

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Aaron is a Health Coach.

Aaron is a University of Sydney graduate with qualifications in health coaching, nutrition and fitness; has completed “Health Coaching Australia Core Training” and the “Smoking Cessation Course” at the Alfred Lung Health Promotion Centre.
He completed his Masters project on nutrition screening among people living with HIV and has worked closely in this field for the last 8 years. Aaron has a holistic approach to health and enjoys helping people achieve their goals.

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Sarah is a Health Coach.

Sarah studied a Bachelor of Nutrition and Dietetics at Monash University and over the years has worked in the area of HIV nutrition and as a Health Coach.
She is particularly passionate about improving health outcomes for people living with HIV and enjoys working with people to achieve their goals.

Tanya Millard is a Research Officer on the HealthMap trial.

Tanya studied Occupational Therapy at Edith Cowan University. She completed her PhD at Monash University where she developed and evaluated an online program, ‘Positive Outlook,’ aimed at improving the self-management skills of people living with HIV.

01_karalyn-_mcdonald_363044Karalyn McDonald is a Research Officer on the HealthMap trial.

Monash UniversityThe Alfred HealthAustralasian Society for HIV Medicine ASHMNational Association of People with HIV AustraliaDeakin University     Flinders University     University of Melbourne     Living Positive Victoria     Australian Government National Health and Medical Research Council